CaringBridge Logs

Journal Entry by F Maranz — November 16, 2023

Hello Ty’s family and friends. Janie would like you to know that Ty got through nine hours of surgery. He’s stable and still asleep at the moment. Janie plans to post more later tonight or tomorrow. Hoping both Janie and Ty are able to get some rest, and sending wishes for complete healing, Felice 

Quick update re visitors:  Ty is stable but still pretty out of it  🥴 this morning, physically and cognitively.  Other than immediate family,  NO visitors today.    I'll update when things improve; hopefully very soon.

 xo Jane

Good evening, all. Ty is doing a bit better, but still needs a day or so before he has any visitors. Hoping to see your smiling faces a bit later in the week. xo Jane

I am happy to report that Ty has turned a corner in his recovery from surgery, and no longer needs me to be his spokesperson.  Woot! Woot!  He still has a loooong way to go before being released from the hospital, and also still has a rough road of months of chemo to navigate, but he is now able to text, check emails, and talk on the phone. Please limit calls and visits to between the hours of 11 and 3, and, if in doubt, text first.  I'll chime in again if needed, but I'm signing off for now!   xo Jane

Howdy folks.  Ty asked me to give a quick update, as his recovery has not been as speedy as hoped.  I will spare you all the Exorcist-level details, and will simply say that his innards have not been healing from the surgery as efficiently as had been anticipated.  That said, he is in good spirits and, while a bit weak, enjoys hearing from you all.  He is still at Sloan Kettering (67th and York), and has been moved to a Logan Roy-level corner private room, with bridge and river views, much to his delight.  Visitors and calls are welcome between 11 and 3; texts are welcome 24-7.  xo, Jane

Oyez, Oyez.  After 19 days and a roster of post-surgical complications to fill a season of Grey's Anatomy, Ty has finally been sent home from the hospital. Many thanks to all whose visits and calls made the hospital stay a bit less bleak.  We are now back home in New Jersey, chilling for a bit before Ty starts chemo, et al.  Ty is fully back on line, so, once again, I am signing off!  xo Jane

UPDATE FROM TY:  Short update from yesterday's meeting with the medical oncologist (i.e. the chemo doctor).  Chemo (likely FOLFIRINOX) likely to start around end of January.  Treatment every 2 weeks for 6 months.  Will probably feel unwell for 2-3 days after treatment then be OK until next treatment.  Usual scary list of side effects, "normally" not life threatening.  Will know about clinical trial by end of January which will dictate where I have chemo (if in, then NY; if not in, then Fla).  Current thinking is to be in Fla "as much as possible" even if chemo done in NY.

Thanks All

Half through vaccine part of trial. All good so far. 3 more to go then chemo. 

Vaccine part of treatment completed.  Half way through chemo.  6 down, 6 to go.  Looking forward to August 13th, my last treatment.  Side effects within acceptable parameters.  Only really annoying thing is the post chemo fatigue never completely goes away, albeit it is better the second week following chem (i.e. the non-chemo week).  Oh well, nothing is perfect.

BTW, emotionally I am also doing fine.  (Although it could be the drugs talking.) No one wants to die but everyone will at some point.  I am "lucky" enough to have some data on when and how.  This tends to brings things into focus and make  priorities sharpen.  I am trying to enjoy every day and are blessed by many folks who for reasons that often escape me love me.  And I love them.

Till next time,

Love

Ty